Who can enroll?

  • Children and adults of any age
  • Individuals who are diagnosed with an autism spectrum disorder (ASD) or suspected of having an ASD
  • Individuals who do not have an ASD
  • Residents of the Mid-Atlantic and adjacent regions
  • A parent may enroll an individual over 18 years of age if the parent has legal guardianship or power of attorney for the individual. Otherwise, the individual must complete enrollment for him/herself.
  • Due to state and federal regulations, foster parents may not enroll children within their care in autismMatch, unless they also retain legal guardianship.

How do I enroll?

  • Online by clicking the "Create an Account" tab above or anytime by visiting www.autismmatch.org
  • Request an enrollment package by e-mailing autismmatch@email.chop.edu or calling our toll-free number, 1-866-570-6524
  • Enrollment takes 20 to 30 minutes

What should I expect if I decide to enroll?

  • After providing some basic information, you will be asked to read and sign an informed consent form that will give you important information about autismMatch, including its purpose and any possible risks and benefits of participating.
  • You will then be asked to complete a short questionnaire about your family's background and the developmental history of the individual being enrolled.
  • In most cases, you will also be asked to complete one short screening questionnaire for the individual being enrolled. (There is no screening questionnaire for children under 16 months of age.)
  • Based on your family's profile and interests, you will be contacted from time to time about opportunities to take part in ASD research. If you have enrolled in autismMatch online, a list of studies for which you or your family may be eligible will appear on your user dashboard. You may ignore or decline participation in any study for which you may be eligible.
  • If no studies appear on your family dashboard or if you are not contacted to participate in a study, it is because we do not currently have a study that is a good fit for you. Be sure to check back as you or someone in your family may become eligible for a new study!

What about confidentiality?

Information collected about you will be kept confidential. Personally identifiable information is not shared with anyone without your consent. autismMatch provides multiple levels of security consistent with the Health Insurance Portability and Accountability Act (HIPAA) and National Institutes of Health (NIH) standards.

What are the benefits of taking part?

  • You will learn about opportunities to participate in new research studies, some of which may provide clinically relevant feedback and may pay you for taking part.
  • Your participation, along with the participation of other families, will help move research forward!

How much time will it take to join autismMatch?

autismMatch recognizes that families have plenty going on in their lives. Enrolling in autismMatch should take about 20 to 30 minutes. If you are enrolling online, you may create a unique login so that you may complete your enrollment in stages.

Already enrolled in autismMatch?

You may have enrolled in autismMatch under the old system. For your convenience, we have imported that information into the new system. To access your account, you will need the email address that you entered when you initially enrolled in autismMatch**.

Please click on the "Log In" button at the top right-hand corner of your screen, enter your email address, and use the "Forgot Password" function to reset your password. Once you receive the email prompting you to do this, you will be able to log in and gain access to your account. If you do not receive the email within 15 minutes of submitting your request, we suggest that you check your Spam/Junk folder. There is a chance the message accidentally got sent there.

Once you reset your password and gain access to your account, we encourage you to update your Profile and Background Information forms and any additional screening questionnaires at this time. Updating this information will give you the most accurate feedback regarding which studies you and/or your child may be eligible for. 

**If you have changed your email address since you enrolled in the old system, please email Julianne Fretz, the autismMatch Family Consultant, at autismmatch@email.chop.edu and provide her with your new email address. She will update your account. Once these changes have been made, please follow the directions listed in the above paragraphs.

I forget my password, but when I use the "Forgot Password" function, I don't receive an email.

If you do not receive the email prompting you to reset your password within 15 minutes of submitting your request, we suggest that you check your Spam/Junk folder. We have found that requests sometimes get sent there.

Why is autismMatch focusing initially on the Mid-Atlantic and adjacent regions?

By limiting our geographic reach, we can:

  • Build strong community partnerships
  • Increase the diversity of people participating in research so that research will better reflect all interests and needs
  • Identify and address gaps in critical services to specific regions and/or groups

How can other researchers use autismMatch?

Any researcher with a study approved by an NIH-recognized institution may apply to recruit participants through autismMatch. For more information, email autismmatch@email.chop.edu.

Need to reach us?

autismmatch@email.chop.edu

1-866-570-6524

3535 Market Street, Suite 860, Philadelphia, PA 19104